North East and North Cumbria
ICS Formulary
 
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9 Nutrition and blood
09-08-01 Pompe disease

Alglucosidase Alfa Myozyme®
Formulary

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Avalglucosidase alfa Nexviadyme®
Formulary
  • 100mg powder for concentrate for solution for infusion
  • Approved for treating Pompe disease in line with NICE
Link  NICE TA821: Avalglucosidase alfa for treating Pompe disease

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Cipaglucosidase alfa (CIPA) Pombiliti®
Formulary
  • 105mg powder for concentrate for solution for infusion vials
  • Approved with with miglustat (Opfolda) for treating late-onset Pompe disease in adults in line with NICE and NHSE Specialised Commissioning guidance


For information only - as there are no providers within the North East & Cumbria area that are commissioned to provide this service

Link  NICE TA912: Cipaglucosidase alfa with miglustat for treating late-onset Pompe disease

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